Buenas noches, dear readers.
As you mayo have inferred from the title (I slay me), my day at the famed clinic today was somewhat of a letdown. However, I’m going to start with the good news first.
The Good News
I saw Dr. Julie Bjoraker this morning, in the department of General Internal Medicine. She was nothing short of fantastic. She was beyond patient, and even more thorough than I’d expect of a doctor working at a world-class institution. She took the time to investigate every complaint, and explained everything to me in full detail. After she talked with me and examined me, she came up with a tentative diagnosis that wasn’t a complete surprise, but still good to hear; fibromyalgia. If you read the information at that link, you might be curious as to why those are good syllables to hear uttered from a professional’s mouth in your general direction, and you’d be right to do so. The reason is that there have been two specialists who have, in the past, basically insinuated to my face that I’m making all this up because I want attention. To have someone actually validate that I’m experiencing real, physical symptoms, and to give me a direction to go in is incredibly valuable. I mentioned that it wasn’t a surprise, and that’s because my doctors at home have mentioned it, and even pre-emptively put me on FM meds to see if I experience some benefit (which I have). Unfortunately, those excellent doctors were hampered by the 6-18 month waiting periods of the Canadian health care system, otherwise I’m sure that I’d have been sent to see a rheumatologist and diagnosed in short order. Dr. Bjoraker referred me to an FM clinic here at Mayo, where she said they will teach me about the condition, and employ a number of therapists and experts to formulate a plan to get back to living, and going to school.
The Bad News
Some inconsiderate arsehole was late for an appointment with Dr Bjoraker today to the tune of half an hour. That arsehole’s appointment was directly before mine, so I saw the doctor half an hour late. All in all, not too bad; I’m accustomed to much worse wait times at home. What really makes me want to find that arsehole and punch him/her in his/her teeth is that whoever set up my itinerary here booked my following appointment too close, and overlapped with my first appointment. If Dr. Bjoraker had been early, or if the appointment had been cut shorter than the 90 minutes I was allotted, I would have been fine. However, booking gave me literally 0 minutes of leeway, so I missed my neurology appointment. Next available appointment? July 27th. That is two weeks from now, in case basic math escapes you at whatever hour you read this (as it did me, when I was initially given the date). My only other option is to be a ‘checker patient’; this entails waiting around in the Neuro lobby until there’s a cancellation and a doctor can fit me in (which is what I did all afternoon). Fortunately, the Neuro lobby has jigsaw puzzles. However, we can’t afford to just stay here day after day and hope that I can get in, because it’s expensive and boring. In addition, I can’t get into the awesome-sounding FM clinic until August 29th (incidentally, Ben’s birthday). Oh the humanity!
The Glimmer of Hope
Fortunately, there’s a Patient Advocate who we’re marching on over to see tomorrow. Basically, we’re a little miffed because Mayo screwed up scheduling, and now we’re majorly up the river. Because although I could do without going to the FM clinic, as such things exist at home, it sounds like Dr Bjoraker doesn’t want to give a firm FM diagnosis until I see the neurologist. As you may be aware, I’m moving to Hamilton in 27 days, and I’m seriously hoping to leech off of the Ontario government after I get there. Because eating’s important. I’ve already looked at Disability forms, though, and it looks like having a diagnosis is very important to my suckle-from-the-government’s-teat-plan. So I would very much like to see the neurologist before I move, and having to make two trips down here would be highly inconvenient. So hopefully this “Dave” advocate fellow can do something to help us out, or we’re SOL.
Sorry I didn’t have anything funny to say today, I can’t be a font of creativity every day for 100 days! For that, you’ll have to trek on over to Bespoke.